Language: English Cymraeg

About Us

Home > About us

About Dying Matters

Dying Matters is a coalition of 30,000 members across England and Wales which aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life.

In 2009, the National Council for Palliative Care (NCPC) set up the Dying Matters Coalition to promote public awareness of dying, death and bereavement. It is chaired by Professor Mayur Lakhani, who is a practising GP. The work of the Coalition is supported by NCPC’s Board of Trustees.

Our members include organisations from across the NHS, voluntary and independent health and care sectors (including hospices, care homes, charities supporting old people, children and bereavement); social care and housing sectors;  a wide range of faith organisations; community organisations; schools and colleges; academic bodies; trade unions; the legal profession and the funeral sector.

The Coalition’s Mission is aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life. This will involve a fundamental change in society in which dying, death and bereavement will be seen and accepted as the natural part of everybody’s life cycle. Changes in the way society views dying and death have impacted on the experience of people who are dying and bereaved. Our lack of openness has affected the quality and range of support and care services available to patients and families. It has also affected our ability to die where or how we would wish.

The Dying Matters Coalition is working to address this by encouraging people to talk about their wishes towards the end of their lives, including where they want to die and their funeral plans with friends, family and loved ones.

Our website will help you start those conversations.

Talking about dying makes it more likely that you, or your loved one, will die as you might have wished and it will make it easier for your loved ones if they know you have had a ‘good death’.

About Find Me Help

Find Me Help is the U.K.'s largest directory of services for people in the last years of life, their families, carers and friends. There are currently listings for organisations providing services.

Find Me Help is the product of a partnership between a large number of organisations and individuals led by Dying Matters. Key contributors are listed below:

Macmillan Cancer Support have funded the development and production of Find Me Help. About Macmillan:
"One in three of us will get cancer and it’s the toughest thing most of us will ever face. If you’ve been diagnosed with cancer, or a loved one has, you’ll want a team of people in your corner supporting you every step of the way.
"We provide practical, medical and financial support and push for better cancer care. We are Macmillan Cancer Support."
Hospice UK have provided information for Find Me Help and have supported its developement:
"Hospice UK is the UK charity supporting hospices and championing hospice care. We advocate for and raise awareness of hospice care, promote and support clinical excellence, and support those providing hospice care. As the national membership charity for 218 local hospices across the UK, we work with them, and other organisations, to grow knowledge and expertise, tackle fear and challenge taboos and open up hospice care to more people.
Find us on facebook or twitter".
The National Council for Palliative Care (NCPC) have provided their database for Find Me Help and have supported its developement:
"NCPC is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland. We believe that everyone approaching the end of life has the right to the highest quality care and support, wherever they live, and whatever their condition. We work with government, health and social care staff and people with personal experience to improve end of life care for all."
Age UK have provided data on their services to Find Me Help and supported its development.
"Age UK aims to improve later life for everyone through our information and advice, services, campaigns, products, training and research. Our vision is a world in which older people flourish."
Carers Trust have provided data on their services to Find Me Help and supported its development.
"Carers Trust is a new charity which was formed by the merger of The Princess Royal Trust for Carers and Crossroads Care in April 2012. Carers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems. With our Network Partners, we aim to ensure that information, advice and practical support are available to all carers across the UK."
Sue Ryder have provided data on their services to Find Me Help and supported its development.
"Sue Ryder provides compassionate care to people with end of life and long term needs. We are a national charity delivering health and social care services in local communities."
Marie Curie have provided data on their services to Find Me Help and supported its development.
"Marie Curie Cancer Care provides end of life care to terminally ill patients in their own homes, or in one of our nine hospices."
"ehospice is a free app and website that publishes the latest news, commentary and analysis on hospice, palliative and end of life care. It brings together the global hospice and palliative care community to share good practice and innovation, with the aim of helping to improve care around the world. It is an international collaboration between several national and regional palliative care organisations, each of which manages an edition covering their country or region. Hospice UK publishes the UK edition, and the Worldwide Palliative Care Alliance and the International Children's Palliative Care Network also publish international editions.
Follow ehospice on twitter."
Sue Brayne has produced the information section of Find Me Help on the basis of her booklet Nearing the End of Life, produced with Dr. Peter Fenwick.
Sue says "My aim is to provide practical, down-to-earth information on how to talk more openly and honestly about the way we age and how we approach the end of our lives."
Provided by Dying Matters Logo of Dying Matters